Well, yesteday was another great day at reiki, of course!  As soon as we got there we were handed a card for Sam.  His reiki family had collected money to buy him a special swimsuit I had mentioned before.  I had lamented the fact that special needs things cost so much more than they should, but Sam feels so great in the swimming pool, so now we can get him this.  While all that was going on, Sam was enjoying all the energy and felt terrific.  Every time we go there, he feels better and better.  They were singing a Sam song and he was moving all around.  Before we left, one of the women there told me she may be able to get us our plane tickets to Montreal when we go in the fall.  It's just amazing to me how much happens when we're there, or because we've been there.  Blessings abound.  

 

 

I'm trying not to let so much time go by in between posts, and it's just sad that I think 5 days in between is pretty good. There was a time I was better than this.  Oh, well. 

 

Something pretty funny happened on Friday.  During vision therapy, Sam was being obstinate and refused to make his toy work while everyone was watching him.  His therapist Barb was here along with Toni, who works with some of the same children but isn't normally here.  We wanted Sam to show off for Toni and make the doors open and the animals pop up, and we all sat and cheered him on and so he did absolutely nothing, Sam-style.  After about 10 minutes of this, Toni and Barb started talking about another child, ignoring Sam.  With that, he started pulling and pulling on the levers, making the thing go and go.  He must have pulled the switch a dozen times in a minute and a half.  When I realized the connection, it was pretty funny.  Every now and again, I get it.  He will not be ignored. 

 

Mother's Day was quiet.  Ben sang in church, and then we came home and just hung around on the front porch.  Holidays are always hard, mainly because I remember last year, whatever it was.  And this year isn't different enough.  In between services, Sam's feeding tube leaked all over the place, so when we came home I changed the Mic-key button just to be sure it wasn't faulty inside.  There's a balloon that holds it in place, and leaking is a sign something might not be quite right.  For some reason, changing that thing always makes me cry. 

 

Today we saw the GI (gastro-intestinal) doctor that Sam sees because he has a feeding tube.  It seems Sam has lost weight, which isn't good.  For a few months now, it's been a battle to get food in him, but since we've been seeing Dr Towle for just these past two weeks, it's been much easier to feed him.  Before, "eating" made him miserable, but now he doesn't mind so much, so I'll be able to get more food in him more quickly.  This is a recent development, but when I told the GI doc this he dismissed it immediately and told me he wanted to put Sam back on the bottles of chemical goop he was on before I started making his food myself.  I said no, so we'll see where we go from here.  I'm not even convinced they weighed him right.  His feet were hanging off the scale leaning against the wall, for heaven's sake!  But, we go back in 6 weeks, and we'll see what happens then.