So summer's in full swing here, I guess. School's been out for Ben for almost 3 weeks, and he's not seeming to
mind running to appointments and stuff with us. Most of Sam's appointments look like they're in fun places - kids' therapy
places are filled with things that look like fun (to everybody but Sam) so he's okay with it. We should have him in
camp or something, but that'll only be for a couple of weeks later on in the summer.
Today we had to get a rush appointment with the eye doctor. Sam's left eye is always looking red and painful -
it doesn't quite shut tightly, even when he's asleep it's not as tight as the other one, and it's been reddish and irritated.
I think it has something to do with the fluid in his ear, too, but the eye doctor doesn't seem to think so. Anyway,
he also has eyelashes in the corner of his eye that poke in the wrong way. Remember, he is "Boy Who Can't Get A Break
Ever". We've been keeping his eyes moisturized, gotten the allergy out, done everything we can think of, and today his
eye was all swollen and awful looking. Poor little guy. Like he hasn't been through enough. So he has an
infection in the eye now. Once we get that cleared up, we'll go back in two weeks and the eye doctor is going to pluck
out those lashes that are poking in the wrong way as well. OUCH!! She doesn't think it will hurt - I hope she's
right. Luckily, everybody in the office is so kind and compassionate. I know they'll do whatever they can to make
sure it doesn't hurt him. I have to say I'd hesitate to do it anyplace else, but it's one of the few offices that seems
to really care a whole lot about the extra attention he needs. It's not like it's a lot of extra attention,
it's just different.
He is scheduled for his ear tube surgery in August, but he may get in sooner if someone cancels. I think he needs
that to clear his eye up as well.
So we left there and stopped at McDonald's (Ben's big treat) and I realized I had lost Sam's dayplanner. It has
every appointment and all his doctors' phone numbers in it from when he was born. (I stopped keeping track about a year
ago.) I got a little panicky - I'd like to forget it all, but I know I can't. Luckily we weren't
too far away from the office, which is where I figured it must be, and it was at the front desk when I went back.
Sam's still doing well with his reiki and Dr Towle. His occupational therapist actually wrote that into his evaluation,
which is pretty big stuff. His arms and hands are much much looser. He may not even need the botox injections.
He's almost 3. I sigh every time I write that. Or think that. I just don't get it.
