Bob Blog

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Welcome to the Bob Blog.  "Bob" is Sam's alter ego.  Before Sam was born, Ben decided his name should be Bob.  (We should have known better than to ask, right?) And it stuck.   As Sam gets better and better, Ben calls him "Bob" a little less.  We think when Sam wakes up, "Bob" will disappear completely as far as Ben is concerned.  As for the rest of us, well, Bob's a hard habit to break...

I'll try and keep everybody updated on Sam's progress, my thoughts, our daily ups and downs.  It's tough sometimes, and I don't do as well as I'd like. 

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August 15, 2007

Okay, well, I'm bleary eyed and am probably going to babble (like that's unusual, I hear you saying) but we may have a connection in India to get the G-therapy that we've been wanting to start with Sam.  I had mentioned it to Marieta (sort of off-handedly, not really thinking) and she mentioned something about Pakistan (?  I think) and then contacted an old friend in Atlanta who has a sister from India and it turns out this sister is from the very same town that the clinic in India is in!  And her parents are travelling here from Pune, India next month and would be happy to help us!  (I think I have that all straight, but I could be wrong.)  Can you even believe that?!?!  (no, not the part about my being wrong, the rest of it.) 
 
So, now it's a matter of getting all the medical records in order for the doctor to review quickly enough and then getting the money together quickly enough, but we have certainly been over this coincidence thing often enough, I think.  I just don't believe there's any such thing anymore. 
 
So pray this works out for us - I've heard such wonderful things about this, some from parents whose kids can tell them what they're feeling. We just have to try.   
11:01 pm | link

August 13, 2007

Well, since I yammered on and on last time, I guess it was inevitable that I disappear for a while, right?  No?  Eh.  As usual, everything is fine; just wrapped up in a little emotional mini-meltdown all my own.  Nothing important.  I just never have a day that I feel like I've done enough for him, and sometimes that gets to me.  I'm hoping the ABR program we learn in Montreal will help with that, too, but somehow I doubt it. 
 
Sam's doing fine.  He went to the pool this weekend, and had a great time.  I got him one of those swimsuits that is all full of floaty stuff, and it was like he was wrapped in a raft.  He laid there and promptly fell asleep. It was good to see him feeling so good.  That has to feel great on him - we all know how great it feels to float, and I can imagine how great it feels on his little body that is usually holding him hostage.  He got a little sunburned, a little antbitten, but all in all, it was a good day. 
 
We also had a sweet sweet boy and his mom come up and talk to us.  This little guy came up to Sam and wanted to rub his arm to make Sam feel better - not to stare at him or make faces or screech or anything, but to make him feel better.  What a little angel. 
 
I'm relieved when people don't stare at us -I guess I tend to want to protect Sam and don't expect compassion from strangers too often anymore.  Boy, that stinks.  I'll have to work on that.  That's probably as much my fault as anything. 
6:35 am | link


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