Five days until we leave for Montreal and
ABR. I'm excited to go, and have joined the support group so I've been in touch with a bunch of moms who have been doing
this therapy for a while with great results. I've already learned a lot about what to expect - it helps tremendously
to know people who have already been. I can't imagine how anybody survives this without access to the internet.
Hmm. I can't imagine how anybody survives this with it, honestly.
Sam's doing well. Whatever was bothering him last week seems to have gone. He's had a couple of iffy spots,
but I guess we all do. The difference with Sam is that he has eyes on him every second of his life, so he can't get
away with anything. He's been a little sneezy every now and again, and that rocks him pretty hard. He hates it,
and it throws his whole body out of whack. I think it throws his ribs out; Dr Towle said it's a pretty violent act,
and from Sam's reaction, it's no surprise. We'll see him again the day before we leave for Montreal - I've come to rely
on him so much I'm a little nervous to be so far away!
We leave on Wednesday for Canada. We fly out of Orlando at 1:30. We cleared everything through the medical
desk, but I still expect there to be some sort of confusion flying with Sam. There never has been before, but I don't
have high hopes, based on my conversations so far. We have a suction machine to clear Sam's airway since he doesn't
swallow; the guy tried to tell me it wasn't medical equipment. I can't imagine he thinks I intend to vacuum the plane,
but maybe he does. I don't know what they're going to make of his food. I process all of his food (with my
Vita-Mix) so I'm going to have unidentified bottles of liquid with me. I'll have a note from the doctor explaining everything,
but we're planning to get there reallllllly early.
We'll have a few days at the end of the trip to explore Montreal. It'll be the most time we've spent together in
ages. Tim's been working all the time; I've been feeling like a single mom. Ben's going to email his class
every day and send them pictures of everything. It's 71 degrees there today - dropping 20 degrees tomorrow, and
dropping a little more while we're there. Oh, well. It's still 90 degrees here, so it'll feel great.
And some kids have apparently gotten their smiles after doing this treatment. I really need a smile from this boy.
Three years is just not fair.
