So we met a new neurologist today.  And that starts off with reliving the day Sam was born, which is never any fun.  It struck me today how much fun that is for most people - and how much it isn't for us.  And then we spent an hour or so discussing all kinds of other crappy things, like whether our three year old knows who we are, if he can see or not, if he hears, if he understands, and how long he might live.  Of course, no one knows the answer to the last question, and the other questions we have to try to prove. 

 

Blech. 

Things are plugging along with Sam and ABR therapy.  No, no smile yet, but I guess that's a bit much to ask.  (I can't think about that sentence too much.  A smile is NOT too much to ask.  But anyway.) 

 

He is still vocalizing a bit more.  And burping a lot - I don't know what that means, but it's something, so I guess it's good!  I'm working on his tummy, so it makes sense.  His digestion seems to be better as well. 

 

I'm slowly increasing the exercises on him, so we're up to a little over an hour a day now.  Got to be careful with this precious little man. 

 

He had an ultrasound today on his head and neck.  The neurologist ordered it so we can get an idea of blood flow to his brain, to see if there's something we can do to help out there.  He SCREAMED for an hour and a half.  The tech was wonderful and kind, but Sam still went nutso for some reason.  The things that bother him just make me wonder.  The blood pressure cuff makes him mad, too.  He fought and fought, and my neck and arms are sore from fighting with him.  That's pretty good - he's never really fought that hard before. 

 

But yeah, I'd rather have a smile.  If anyone's listening who's in charge of those things.