Bob Blog

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Welcome to the Bob Blog.  "Bob" is Sam's alter ego.  Before Sam was born, Ben decided his name should be Bob.  (We should have known better than to ask, right?) And it stuck.   As Sam gets better and better, Ben calls him "Bob" a little less.  We think when Sam wakes up, "Bob" will disappear completely as far as Ben is concerned.  As for the rest of us, well, Bob's a hard habit to break...

I'll try and keep everybody updated on Sam's progress, my thoughts, our daily ups and downs.  It's tough sometimes, and I don't do as well as I'd like. 

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January 19, 2008

Well, look at me.  Less than a bazillion years have gone by and I'm posting again!  By golly. 
 
Should I back up?  First off, let me tell you one thing that was still going on with all of the Sam stuff.  Dr Towle's wife, Debbie, (might be Debby; I'm not sure) was a nurse in some prior life, and now just saves our necks all the time.  When Sam was just a mess, she told me that there might be some trouble with the g-tube (his feeding tube) which, in the middle of all the gasping and everything else, I had not thought of checking.  Well, things were out of whack there as well - the balloon that holds it in his tummy had deflated, causing distress and unrest and problems.  I wasn't even thinking of that - thank goodness for Debbie. 
 
This ship would sink without those two. 
12:47 am | link

January 16, 2008

Good news!

In reading my last post, I know I ran through the whole thing pretty quickly.  I was trying not to go on and on - I know I go on and on too much sometimes, but I think I left out some pretty important stuff and it might not have made too much sense.  But I don't think I'll go into it at the moment.    (Hey, thanks for clearing it up, then, Allison!)    Oh, whatever.  I'm still sleep-deprived.  

Today in physical therapy, Sam held his head up completely on his own for two and a half minutes, twice!  That’s BY FAR the longest he’s ever been able to do that.  We’ve only ever had a few seconds before, and that’s been attributed to his spasticity*.  This was definitely him doing it, though, which is a HUGE improvement. 

I’ve also noticed that he’s gotten some trunk control, and when I touch his back anywhere, he’s responding – almost jumping out of his skin.  I’m going to take that as a good sign, since he doesn’t yell at me when I do it. 

This has pretty much all been in the last week – before that we were getting lots of blinking, which is certainly good, and a lot of movement in his face in muscles that I didn’t even know moved.  Nothing in the “smiler”, but still all around the face. 

*In a person with a brain injury like Sam's, the damage tends to be in the area of the brain that controls muscle tone and movement of the arms and legs. The brain can't influence the amount of flexibility a muscle should have. The command from the muscle itself dominates the spinal cord and, as a result, the muscle is too tense, or spastic.

11:28 pm | link


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