Bob Blog

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Welcome to the Bob Blog.  "Bob" is Sam's alter ego.  Before Sam was born, Ben decided his name should be Bob.  (We should have known better than to ask, right?) And it stuck.   As Sam gets better and better, Ben calls him "Bob" a little less.  We think when Sam wakes up, "Bob" will disappear completely as far as Ben is concerned.  As for the rest of us, well, Bob's a hard habit to break...

I'll try and keep everybody updated on Sam's progress, my thoughts, our daily ups and downs.  It's tough sometimes, and I don't do as well as I'd like. 

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February 6, 2008

Okay.  So.  Yipes.  I always feel like somebody's old grandpa when I sit down to write, sitting around the fire, telling a story.  I guess there's worse things. 
 
And yeah.  I just had to walk out to the car to get my reading glasses, because apparently, I AM grandpa.  Was that a self-fulfilled prophecy, or what?
 
Things with Sam are good-ish.  Like growing pains.  He's not happy, but I believe his body is changing for the better, and that's not a pleasant feeling.  He was bawling and sobbing and screaming the other morning until he let out a loud BURP, then stopped - just like a "NORMAL BABY"*.    But the crying, then burping, then settling, like a "normal" baby - that's never ever happened before. 
 
Also, his head control is getting so much better.  It's crazy!  In therapy on Monday, he kept dropping his head down, and then when I would touch his head, I KNEW he had head control.  I could feel it in my fingers.  When I mentioned it, he made a point of dropping his head down with no control, to prove me wrong.  Punking me!
 
His cheek started twitching like mad the other day – he jumped like somebody had pinched his bottom, and then his cheek started twitching like crazy.  His eyes were going “whoa, what’s this?!” (Leonid had said that would happen as he started waking up.)  It lasted about 20 minutes.  
When he’s been complaining about being on his back for ABR, he wants me to pick him up and snuggle him for a while.  That has really never happened.  It’s hard to explain, but he’s snuggling back now.  Sometimes.  Not often enough.  But at least it's in there.    
 
 
 
**Two things here.  I know he's not a baby.  Matter of fact, I'm one of the few people who realize he's not a baby.  Most people are amazed he's so big, because he's just a baby.  No he's not - he's almost 4, he just can't walk or talk, so he seems to be a newborn. 
 
Secondly, I feel disloyal to him to ever compare him to or say anything about "normal" or "regular" or whatever, but of course I do, and there you go.  Of course it happens.  Don't give me crap about it.  It is what it is.  I live it. 
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