Bob Blog

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Welcome to the Bob Blog.  "Bob" is Sam's alter ego.  Before Sam was born, Ben decided his name should be Bob.  (We should have known better than to ask, right?) And it stuck.   As Sam gets better and better, Ben calls him "Bob" a little less.  We think when Sam wakes up, "Bob" will disappear completely as far as Ben is concerned.  As for the rest of us, well, Bob's a hard habit to break...

I'll try and keep everybody updated on Sam's progress, my thoughts, our daily ups and downs.  It's tough sometimes, and I don't do as well as I'd like. 

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September 24, 2008

So where was I?  I didn't mean to slip off the face of the earth again, but nobody's been feeling too great around here lately.  But I think we're probably okay now - as okay as we get, anyway. 
 
Sam's been...well, weird.  Yelling and screaming and grouchy as all get out.  I THINK it's a good thing.  I THINK the new experiences, new connections, new feelings that he's having (as he claws his way out of that fog he's in) must be scary and unsettling.  When I hold him sometimes, it just seems like he's communicating more somehow, which is hard to explain. 
 
And on that note, we had a REALLY good revelation last week.  Barbara, our fantastic vision therapist, was here working with Sam, and she was showing him a book he likes with shiny animals in it.  Then she asked him how many giraffes were on the page, how many zebras, etc. and held up two cards so he could choose the right answer.  He got it right!  They only did it for the last few minutes of her visit, but he got 1, 2, and 3 right, very quickly.  He missed on 4, but the option was a 4 of a 9 to choose from, so I'm letting him slide on that one since they look so much alike. 
 
But he can do it.  A new way of communicating.  He was either thrusting his head at the card, or he was lifting his arm, as if to point at it. 
 
As exciting as that was, it took a few days to really sink in that this could unlock him even more.  We can give him more choices to make himself known and let him make decisions and have some control of his life.  Man.  Just think about that.  Makes my head explode.
 
We're still doing ABR and I think we're getting some good results, although it is a slow process.  Since he's seeing more now, and ABR requires him to be on his back quite a bit, I've been trying to find some sort of projector so I can show him images on the ceiling.  That way he'll be less restless and I can work on him longer.  I'm not having any luck - the ones made for infants are too dim, and I'm not finding anything that seems to work too well. 
 
As a matter of fact, I have to get back to it now.  There are some exercises that I have to do while he's asleep - he has to be lying flat on his side, and since I can't do that when he's being fed because of reflux, I have to wait until the wee hours. 
 
Thanks for checking in.  I'll try to get back on track. 
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