|
|
 |
Here are some pics from fall of '04.
If you're squeamish, don't look too closely at the picture all the way at the bottom left, because you can see the feeding
tube in it. It's not pretty, but it's important.
|
|
|
|
|
Here we are, just hanging around the house like normal folks. Sam is off of his feeding tube
twice a day, for two hours at a time. Those times feel more normal than anything, because we can move about the house
freely without worrying about dragging anything around. Those are the times when Ben holds him and everybody can almost forget
for a little while that there are machines lurking in the background. The blue things on his hands are "splints"
which keep his thumbs flexible and loose. One of the signs of brain damage is clenching the hand in a fist, which he
does, but his hands are starting to loosen up on their own. A very good sign...Yeah!
|
|
|
|
|
At about 8 weeks old, after bath and getting ready for pajamas.
The feeding tube is the bizarre thing you see jetting out of his side. It doesn't seem to hurt him anymore, and we're
so grateful for that. Once his swallower kicks in, we can have this removed and it should heal up nicely, with just
a scar to remind him of what a miracle he is.
|
|
|
|
|
Although Sam is moving more and more (YAY!), he doesn't move freely and spontaneously enough.
Because of this, we have to do "Range of Motion" exercises to keep his muscles and joints moving so they don't seize up.
He'll be needing those muscles to play soccer and clobber his big brother one day!
|
|
|
|
|
|
|
