What's Next

Home
Bob Blog - Daily(ish) Updates
Sam's Therapies
ABR Therapy / Visiting Montreal
New photos (as of June '08)
Sam's Birthday
Chrissy and Sam's Car Wash, Parts 1 and 2
What's Next
Sam's Progress Diary
Yahoo!
What Sam gave us for Christmas
Sam's story
July 29, 2004
Therapies
Things That Make Me Crazy
Keeping the Faith
Rotterdam: Stem Cell Treatment
Scrapbook
In the ICU's
To the Nurses
old news
Tijuana
London!
Ben's Preschool Graduation
Contact Us / Guestbook
Links

We're always looking for answers somewhere.  We don't normally find them in our back yard:  the search for help for Sam has taken us lots of places we wanted to see, but not under these circumstances.  We just can't accept that there's nothing out there for him. 
 
Here's what we're looking at next. 

 
We have plans to travel to Montreal in October '07 to learn this treatment plan for Sam.  I had learned about it briefly a while ago, while I was inundated with many other things, but recently I got about a dozen or so emails, basically out of the blue, from parents who are using this technique with great results on their kids. 
I have about a half dozen Yahoo groups that I use for a lot of the research I do, and I have quite an extensive bunch of other relentless moms, and quite randomly I started hearing from these people.  So, yes, I'm listening, and talked to Tim and we figured we'd better go.  Too much of a coincidence to ignore. 
 
The idea is that much of our structure is developed by our moving around, and since Sam isn't moving, his structure is getting more and more "mangled".  For example, we all have a picture in our head of what a person who has had a stroke or brain injury looks like, with their mouth hanging open.  Sam can't swallow, and the brain injury is causing his lower jaw to recede more and more, making it even harder to swallow.  I can barely even force his mouth to close at this point.  The ABR therapy should help with that, and so many other things.  His rib cage is starting to splay, his hands are clenched, and these are things we can "tackle.  I'll learn exercises that I'll do TO him for about 4 hours a day, every day.  But the results are apparently pretty impressive. As one mom pointed out to me, she's never heard anyone who didn't think it had helped their child.  And that's pretty impressive. 

 
 
G-therapy is another one that I had heard about a while ago.  I thought it was a form of physical therapy, but it turns out, it's not!   (We just couldn't bear any more.)  Anyway, it's a homeopathic therapy that seems to really be doing some incredible things for kinds with cerebral palsy.  Some of the kids who are verbal are noting changes very quickly.  I heard from several people about this recently.  It can't hurt him, and is getting some positive attention.  This article was recently on CNBC. 
 
The clinic is in India, but we don't all need to travel to India.  The doctor can actually review Sam's records through the mail and through video tapes, and then can give the medicine to one of us, or even to someone else who's travelling back to the states.  (So if anyone's planning a trip to India, let me know, please.)